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8 reviews
22 helpful votes
This site is a great resource for those suffering with dysautonomia (an umbrella term for a group of conditions caused by a dysfunction of the autonomic nervous system), and their families. Invisible illness is usually a very lonely road. Communities like these make things a little more bearable. Dysautonomia is all too often dismissed as 'anxiety' by doctors (and the people in our lives). It's frustrating. Maddening. Hurtful. This is a REAL physical disorder, distinct from somatic anxiety, that can unfortunately take years to diagnose. It's a shame you have to be literally bed-bound and non-functional before clueless doctors take you seriously. Quality of life is a major issue for a lot of us.

I've learned A LOT here (the mechanisms behind certain symptoms, what to tell doctors, ways to deal nutritionally etc.), and I continue to learn all the time. The site is super active. Everyone's friendly, open, and helpful. It's comforting to know you're not alone - although I wish no one had to go through this. Knowledge is empowerment.

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