Why are you not more active in creating public and medical community awareness about this condition? So many people have never heard of it.

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Why are you not more active in creating public and medical community awareness about this condition? So many people have never heard of it.

asked by Veronica S. on 6/17/19

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Jill O. [IC-Network Rep] · Answer 1 · 2019-06-17T08:52Z

Jill O. [IC-Network Rep]

on 6/17/19

Well, we actually facilitate all of the official IC Awareness Month (https: www.icawareness.org) activities every year. We've been on TV shows, documentaries, radio, more than 100 free guest lectures and, most recently, live support streams at least twice month. IC Awareness Month is modeled after National Women's Health Week... we provide as many materials as we can so that patients like you can reach out in your community to do events, start support groups, reach the media and so forth. It's a massive amount of work which we donate to the cause. We hope you'll join us this year!

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Why are you not more active in creating public and medical community awareness about this condition? So many people have never heard of it.

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